Dor Yeshorim Institute
429 Wythe Avenue,
Brooklyn, NY 11211
(718) 384 - 6060
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135
Phone: 800-906-8723
Fax: 617-277-0134
info@ntsad.org
United Leukodystrophy Foundation
2304 Highland Drive
Sycamore, Illinois USA 60178
Phone: (800) 728-5483
FAX: (815) 895-2432
Email: office@ulf.org
Fanconi Anemia Research Fund, Inc.
1801 Willamette Street,
Suite 200
Eugene, OR 97401
Telephone: 541-687-4658
Family Support Toll-Free Line (in United States):1-888-FANCONI (888-326-2664)
Fax: 541-687-0548
E-mail: info@fanconi.org
National Gaucher Foundation
2227 Idlewood Road
Suite 12
Tucker, GA 30084
800-504-3189
FAX: 770-934-2911
http://www.gaucherdisease.org/
"It is also the most common genetic disease affecting Ashkenazi Jewish people (Eastern, Central and Northern European ancestry), with a carrier frequency of 1 in 10 (Dr. John Barranger and Dr. Ed Ginns 1989). This panethnic disease involves many organ systems, such as liver, spleen, lungs, brain, metabolism and bone marrow."
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